When people let you down
Published by The Chronically Ill Vegan Ballerina
I am a forcefully retired ballerina and veterinary nurse, due to chronic health challenges. After 45 years, 25 of which I was mostly medically gaslighted, I was diagnosed with Ehlers-Danlos Syndrome/Disease & being on the Autism Spectrum. I started to realize back in 2013 that there was a better way to health (for me) than being ignored by mainstream medical personnel when I discovered online health talks & functional medicine. I made a plan to titrate off of pharmaceuticals, while implementing lifestyle changes, including supplementation of amino acids. This was shortly before I ever heard of Ehlers-Danlos. Since then, I have been helped by out-of-the-box medical thinkers online & in person. My goal is to share some pearls of wisdom that have helped me. But I tend to get off-track a lot. Sometimes it is just nice to be able to share experiences with people whether I am ranting or saying what has worked or not worked for my body. View all posts by The Chronically Ill Vegan Ballerina
You hit the nail on the head with this one!! I feel EXACTLY the same way, wanting to give up on people, wanting people to site on me for a change, a deep feeling of lonliness right now (and I also have a husband)!! Just this morning I was mentioning that to someone. I am a people person and this chronic illness is rotting me inside and I can’t stand the isolation!!!
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I’m so sorry. It’s so hard for people without problems to understand. It’s also hard surrounding oneself with friends with chronic illnesses because we are all at different stages and pain levels every day. Sending you gentle hugs, and a gentle hand on your shoulder that you are not alone.
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Thank you ❤❤ Hopefully tomorrow I will get some answers and also in February when I get more shots in my neck & back I’ll have less pain.
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It’s funny – we’re not far away from each other, and still not close enough! There are so many days I wish I could just call you and you could pop over for tea with me! We really do need a ladies’ chat!
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yes!!!!!!!
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