Trying to find hope and usefulness in the dark
Published by The Chronically Ill Vegan Ballerina
I am a forcefully retired ballerina and veterinary nurse, due to chronic health challenges. After 45 years, 25 of which I was mostly medically gaslighted, I was diagnosed with Ehlers-Danlos Syndrome/Disease & being on the Autism Spectrum. I started to realize back in 2013 that there was a better way to health (for me) than being ignored by mainstream medical personnel when I discovered online health talks & functional medicine. I made a plan to titrate off of pharmaceuticals, while implementing lifestyle changes, including supplementation of amino acids. This was shortly before I ever heard of Ehlers-Danlos. Since then, I have been helped by out-of-the-box medical thinkers online & in person. My goal is to share some pearls of wisdom that have helped me. But I tend to get off-track a lot. Sometimes it is just nice to be able to share experiences with people whether I am ranting or saying what has worked or not worked for my body. View all posts by The Chronically Ill Vegan Ballerina
We have to remember that even though we are Wonder Women, we can’t do it all. For me, I had a mini breakdown and lost my shit, screaming I need help, I can’t do everything. My body just shuts down. You need a support system. You have my number. I never do anything. Call me whenever you need, even if it is to bitch, moan etc. My heart breaks for you, but, please know that you are never alone, even if you feel like it. You are loved.
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I’m in the same place as you BD. I grieve for the loss of my former self. Today I got disappointing news. My spine surgeon told me he doesn’t think the spinal implant will help me because of my Fibromyalgia, Osteoarthritis, and Bursitis. So I guess I am just screwed😢 I am in pain EVERY day and sometimes can’t even walk. Even the MMJ isn’t helping. I think I will be looking for a jazzy so we can go on our vacations – we were so looking forward to traveling after retirement. I try to hold it together but I get very angry 😡
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